PCORI Engagement Award

Convening to Support Engagement in Patient-Centered CER
Related to Intimate Partner Violence Related Brain Injury in Washington, D.C.

NASHIA has been awarded funding through the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute. The funds will support a convening of survivors of intimate partner violence (IPV) who have sustained brain injuries, along with researchers, clinicians, and legal system partners, to develop patient-centered research priorities and questions.

Project Goal

Create the Human-Centered Engagement for Advancing Research (HEAR) coalition on IPV-Related Brain Injury to develop research priorities and questions focused on IPV-BI, including comparative effectiveness research (CER) questions, that elevate the lived experiences of survivors. The specific objectives for this project include:

  • Convene relevant partners through HEAR to develop research priorities that include patient-centered CER.

  • Identify and develop effective strategies and methods for engaging IPV-BI survivors and their caregivers in development of patient-centered CER questions.

  • Co-develop patient-centered research priorities and interests that reflect survivors’ lived experiences and define priority research questions on IPV-BI.

  • Explore opportunities to form partnerships and identify potential funding sources to support future CER and sustain ongoing engagement.

Project Team

Jill Daugherty
Co-PI, NASHIA

Jeanne Hoffman
Co-PI, University of Washington

Judy Dettmer
NASHIA

Rachel Ramirez
Ohio Domestic Violence Network

Paula Walter
The Courageous Survivor

Steering Committee

In addition to the project team, the steering committee includes representatives from university research centers, state brain injury programs, health centers, and individuals with lived experience.

HEAR Coalition

The HEAR Coalition is made up of the project team, steering committee, plus individuals who will provide insight during bi-monthly meetings and help disseminate final products. It includes additional members of the brain injury community, representatives from the criminal legal system, researchers, advocates for intimate partner violence/domestic violence survivors, and additional individuals with lived experience.