There are myriad data sources available to brain injury programs. These sources can help:

• Determine just how common brain injury is in your state.

• Discover how many people are living with long-term effects of brain injury.

• Assist in program and resource planning.

However, sometimes it is difficult to know where to start. Which types of data are most common? How can you access them? How can you use the different types? This short guide is meant to help you answer some of those questions to ensure that the data that are available to you are making a difference.

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A new Medicaid 1915(c)(11) waiver authority (effective July 1, 2028) lets states serve people with brain injury who don't meet an institutional level of care — a population that often falls through the cracks of existing HCBS eligibility pathways. This resource outlines key factors states should weigh and how NASHIA can help with waiver design, stakeholder engagement, and preparation for the CMS application process.

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Medicaid community engagement requirements require certain beneficiaries to participate in qualifying activities, such as work, education, job training, or community service, or to qualify for an exemption.

This resource outlines considerations for states and partners in implementing these requirements in ways that recognize how brain injury may affect memory, communication, organization, behavior, and the ability to navigate complex systems.

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